Table of Contents

Key Topics on End-of-Life Care

The Duke Institute on Care at the End of Life is pleased to share with you selected items from Key Topics on End-of-Life Care for African Americans, an intellectual discourse derived from The Last Miles of the Way Home 2004 national conference to improve end-of-life care for African Americans.

Chapter 1

Historical Perspectives on Racial Attitudes and the Impact of Health Care Disparities on End-of-Life Care in the African American Community

  • Harold Freeman, M.D.
    Ralph Lauren Cancer and Prevention Center, New York, N.Y.
  • Richard Payne, M.D.
    Duke Institute on Care at the End of Life
  • Commentary
    Kristy Woods, M.D.
    Maya Angelou Center for Minority Health, Wake Forest University, Winston Salem, N.C.

Chapter 2

African American Perspectives on Pain & Palliative Care

  • Richard Payne, M.D.
    Duke Institute on Care at the End of Life, Durham, N.C.
  • LaVera Crawley, M.D.
    Stanford University, Oakland, Calif.
  • Commentary
    September Williams, M.D.
    Laguna Honda Hospital, San Francisco, Calif.

Chapter 3

Palliative & Hospice Care in HIV/AIDs-A Community CarePerspective

  • William Johnson, M.D.
    Medical Director VITAS Healthcare Corporation, Chicago, Ill.
  • Bethsheba Johnson, MSN,CN.C.,GNP-BC
    Luck HIV Health Care Center, Chicago, Ill.
  • Pernessa Seele
    Balm of Gilead, New York, N.Y.
  • Commentary
    Beny Primm, M.D.
    Addiction Research and Treatment Center, New York, N.Y.

Chapter 4

Spiritual Care Near Life’s End including Grief and Loss in the AfricanAmerican Community

  • Gwendolyn London, D.Min.
    London & Associates, Silver Spring, Md.
  • Robert Washington, Ph.D., M.Div.
    Montgomery Hospice, Rockville, Md.

Chapter 5

End-of-Life Care Ministry in the African American Church

  • Kelvin Calloway, D.Min.
    AME Church, Los Angeles, Calif.
  • Gwendolyn London, D.Min.
    London & Associates, Silver Spring, Md.

Chapter 6

African American Perspectives on Advance Care Planning

  • Gloria Ramsey, R.N., JD
    USC Center for Health Disparities, Silver Spring, Md.
  • Sharon R. Latson
    VITAS Healthcare Corporation, Chicago, Ill.
  • Camilla Hudson
    Patient Advocate, Chicago, Ill.

Chapter 7


Historical & Sociological Perspectives on Death and Dying in the African-American Community

  • Karla Halloway, Ph.D.
    Duke University, Durham, N.C.
  • Commentary
    LaVone Hazell
    Palliative Care Training and Education Program (PTEP), New York, N.Y.

Chapter 8

The Future of Hospice Care for African Americans-Clinical, Policy & Caregiver Perspectives

  • Bernice Harper, Ph.D.
    Center for Medicare & Medicaid Services, Washington, D.C.
  • Michelle-Grant Ervin, M.D.
    VITAS Healthcare Corporation, Washington, D.C.
  • Fay Burrs, R.N., B.S.N.
    National Hospice and Palliative Care Organization HPCO, Alexandria, Va.
  • Commentary
    Congresswoman Donna Christian Christiansen, M.D.
    United States, Virgin Islands

Chapter 9

Theological Perspectives on Death and Dying for African Americans: Christian Perspective and Islamic Perspectives

  • Paul Smith, D.Min.
    First Presbyterian Church, Brooklyn, N.Y.
  • Ibrahim Abdul Malik, Ed.D.
    Imams Council of New York, N.Y.
  • Jeremiah Wright, Jr, D.Min.
    Trinity United Church of Christ, Chicago, Ill.

Chapter 10

Family and Psycho-Social Dimensions of Death & Dying in African-Americans

  • Joseph Dancy, Jr., Ph.D., M.Div., Th.M.
    Norfolk State University, Norfolk, Va.
  • Willie Davis, Ph.D.
    National Association of Black Social Workers, Lansing, Michigan
  • Commentary
    Andrea King Collier, Author, Flint, Michigan

Chapter 11

Working Together: Organizing the Community to Effect Change in End-of-Life Care for African Americans

  • Myra Christopher
    The Center for Practical Ethics, Kansas City, MO
  • Deacon Rosalyn Priester
    Trinity United Church of Christ, Amani Trinity United Community Hospice Health Corporation, Chicago, Ill.
  • Diane Deese
    VITAS Healthcare Corporation, Chicago, Ill.

Chapter 12

Case Study/The Last Miles of the Way Home Town Hall Meeting (pdf)

  • Moderator: George A. Strait Jr.
    Assistant Vice Chancellor Public Affairs, University of California, Berkley, Calif.

Biographies

Resources